Layperson Review Committee

Great science isn’t enough. Diabetes Research Connection’s Layperson Committees help scientists translate complex, jargon-heavy descriptions into engaging, easy-to-understand website presentations that will have the greatest chance of being funded.

The layperson committee is comprised of people affected by diabetes – in other words, our target audience. Members of this group generally know some of the science behind this disease, having educated themselves once confronted with it. Nonetheless, this invaluable team tries to keep it simple so donors read it, get it, and fund it.

There are two levels of participation. A small core committee works with the researcher to help create a presentation once the scientific review committee has approved a project; this requires an understanding of scientific concepts that are commonly used in discussions of type 1 diabetes, and can require a time commitment of up to an hour.

The researcher revises the presentation once the core committee has provided feedback, and then the revised presentation is sent to the lay review focus committee, where participants are asked to view the video, and answer a few questions to determine if the presentation is now understandable and a project that the lay audience is likely to fund. This should only take 15-30 minutes.

If you are interested in participating on either of these committees, we would love your help! Please contact Amy Adams at, aadams@drcsite.wpengine.com.

LAYPERSON CORE COMMITTEE

Amy Adams, Chair
Amy’s son was diagnosed with type 1 diabetes at age 5. Amy served on the Board of Directors for the Juvenile Diabetes Research Foundation (JDRF) for 6 years, served on JDRF’s Chicago Chapter’s Gala, and Walk organizing committees for about 10 years, and is currently a sustaining board member of JDRF. She also served on the Board of Friends United (a diabetes fundraising organization) for about 3 years and was a contributing writer to Insulin Free Times.

Barbara Donnell
Barbara’s daughter was diagnosed with type 1 diabetes in 2001. Since then, she has been an avid fundraiser and advocate for the Juvenile Diabetes Research Foundation (JDRF), serving in the capacity of major gifts, chair, board member, walk team captain, and creator of “Meet the Scientists.” She is currently a JDRF Research Information Volunteer.

Bob King
Bob’s daughter was diagnosed with type 1 diabetes at age 32. Diabetes Research Connection is his first affiliation.

Margery Perry
Margery has a daughter with type 1 diabetes. Margery is on the Advisory Council of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) and serves on the Board of Directors of the Juvenile Diabetes Research Foundation International.

Lorraine Stiehl
Lorraine’s husband has had type 1 diabetes for over 50 years. For 14 years, Lorraine worked as a local, regional, and national staff member for the Juvenile Diabetes Research Foundation (JDRF), opening chapters in 17 markets, in 14 states. She is now JDRF’s national volunteer chair for grassroots advocacy, leading a team of over 80,000 volunteer advocates. She also volunteers her time to the Behavioral Diabetes Institute and the Sanford Consortium for Regenerative Medicine.

Andrew Hinton
Andrew has been a researcher for the last 12 years at UCSD in the fields of stem cell biology and pancreatic development. His research focuses on molecular mechanisms involved in the formation of insulin producing beta cells. Andrew is a part of the Department of Pediatrics at UCSD, more specifically located at the Whittier Institute for several years, and currently at the Pediatric Diabetes Research Center.

LAYPERSON Focus COMMITTEE

Sherry Ahern
Linda Edidin
Manny Hernandez
Michele Hue
Judy Illes
Kimberly Krenek
Anne Lacey
Linda Levin
Sarah Jane Miller
Keith Mausner
Jarryd Wafer
Jake Waxenberg
Scott Polakow
Barrie Scher
Jordan Scher
Stephen Seagren